A Dying Daughter’s Final Days with Her Single Father
Special Books by Special Kids
@specialbooksbyspecialkidsAbout
These interviews are intended to create a more inclusive world. SBSK started when I was a teacher for students with disabilities. Originally intended to be a book written by my students, SBSK soon grew to be video interviews of disabled people of all ages and diagnoses. Since our beginning in 2015, I have interviewed hundreds of people across the world while providing over $2,000,000 to those featured on this channel through a combination of grants and fundraising. Starting in 2015, SBSK is now a 501(c)3 organization that seeks to normalize the diversity of the human condition under the pillars of honesty, respect, mindfulness, positivity and collaboration. This multi-media movement supports the acceptance and inclusion of all members of the neurodivergent/disability community. -Chris
Video Description
Lynnon has a rare genetic condition caused by a mutation in her CRELD1 gene, a disorder with a typical life expectancy of just 2 years. Lynnon is already 2 and a half, enduring constant pain and frequent hospital stays. Her devoted single father, Dillon, has made the heart-wrenching decision to sign a Do Not Resuscitate (DNR) order for his daughter. While he isn't ready to say goodbye, Dillon shares that he wants Lynnon to have peace and rest when the time comes.
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