u故事/地球老爸扮愛的推手 星星少年拚出特奧金牌

WJ灣區看世界 June 22, 2022
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如果家中有位自閉症的孩子,仰賴現有的醫療和特教資源,或許是個辦法;但是,蔡傑的爸爸蔡昭偉不願和現實妥協,毅然辭去工作,全職擔任蔡傑的個人教練,多年來,從運動、口語表達、寫作到生活訓練,17歲的蔡傑已能獨立自理生活,2019年還代表台灣參加東亞區特殊奧運網球賽,拿下雙打組金牌的殊榮。蔡昭偉說:「永不放棄,要有足夠的愛,才有辦法把不可能變成可能。」 蔡昭偉,人稱蔡傑爸,在孩子2歲半被確診為自閉症後,原本望子成龍的期待,轉化成用愛陪伴。蔡昭偉翻閱上百篇文獻,前往療養機構參觀,意識到早期治療的資源嚴重不足,每周僅僅各半小時的語言和職能治療,對孩子的幫助有限,「我不能這樣讓孩子莫名其妙長大。」於是,在孩子3歲多時,決定辭去營造公司工程師的工作,全心陪伴孩子成長。 然而,蔡昭偉擁有的雄心壯志差點被磨滅,跟孩子交手幾年後,發現訓練孩子不如想像中簡單,甚至形容:「孩子的反抗激烈,像是撞牆、咬舌頭,眼神布滿血絲,全身起玫瑰疹的模樣,幾乎要跟你同歸於盡。」 一般孩子的學習效率,對自閉症孩子來說,可能需要千萬次的練習才能達成。像是練習騎腳踏車時,蔡傑突然停在十字路口「感應飛碟」,引發交通大亂,蔡昭偉說:「帶也帶不走,情緒爆發的反應彷彿綠巨人浩克!」加上駕駛們的不理解、謾罵,讓蔡昭偉日積月累的巨大壓力爆發,一度閃過駭人念頭:「如果這樣不聽話亂騎,最好被汽車撞死算了...」所幸,只是一瞬間,蔡昭偉回神後,趕緊帶走蔡傑,內心想著:「他再怎麼糟糕,終究還是我的孩子。」 沉澱過後,蔡昭偉開始尋找宣洩壓力的管道,起初透過文字抒發憤怒情緒,從三字經的負面字眼,隨著時日逐步修整成有結構的故事篇章,意外成就部落格的人氣和網路聲量,讓他最開心的是,在自閉兒家庭間引發回響,互動互助。 之所以選擇寫作,蔡昭偉根本是挑戰自我罩門,「從小到大最痛恨的科目就是國語,寫作能力也不會好到哪去。」蔡昭偉透過文字記錄下孩子的生活,身為父親也希望成為蔡傑的楷模。「我真正的寫作從30歲才開始,經過十年,如果我成為作家,蔡傑是不是也可以?」 家住嘉義縣朴子市的蔡傑,跨學區就讀太保國中,交通工具從腳踏車換成公車,蔡昭偉當時寫下《揮手男孩等公車》這篇文章,描繪自閉症孩子如何學會搭公車的辛苦歷程。有一回,蔡傑和蔡昭偉先後揮手招車,公車駕駛毫不理會,蔡昭偉便衝到馬路中間肉身擋車,「我就跟你拚了!絕不能讓孩子認為,再怎麼認真努力,也不被社會接納,一定要讓他有成功的經驗。」 蔡昭偉陪伴愛子成長,人生跟著大轉彎,從營造工程師成為特教老師,甚至自詡自閉症傳教士,期許社會大眾對自閉症孩子多些理解和寬容。 #u故事 #星星少年 #灣區看世界 #蔡昭偉 #自閉症 #蔡傑 #特教 授權:聯合報系 影片來源:udn video 想看更多u故事,請加入聯合報數位版 https://vip.udn.com/vip/index

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