Venous Stenting for Intracranial Hypertension + My Experience

Video Description

Venous stenting is an alternative treatment for intracranial hypertension patents that have something called cerebral stenosis. It is less invasive than a VP or LP shunt, and often has less complications. Recent studies have shown that most patients that have undergone stenting have had a significant reduction in ICP levels and symptoms associated. In order to know if you qualify for stenting, you must first have something called a cerebral angiogram. Many have to travel to find a specialist to treat them, as this is not a common procedure. Last year, I had 2 stents placed in my right transverse sinus at Weill Cornell in NYC. Here is my experience with stenting and some information that I've learned along the way. My left transverse sinus was hypoplastic (not fully developed) and didn't have any flow, and my right transverse sinus had severe stenosis. Unfortunately, I didn't have much symptom relief, but my case is a bit more complex than many. I later learned I have a connective tissue disorder called Ehlers-Danlos Syndrome. I also have chiari malformation and craniocervical instability. These conditions can cause all the same symptoms of IIH--and I will soon undergo surgery to treat them. FACEBOOK GROUP: "Stent/IIH" https://www.facebook.com/groups/198904797135988/ Doctors/centers that specialize in venous stenting for IIH: **comment below if you know of more doctors** -Dr. Athos Patsalides (Weill Cornell) -Dr. Moghekar (Johns Hopkins CSF center) -Dr. Kenneth Liu (currently not practicing) -Dr. Kyle Fargen (Winsten Salem, NC) -Mayo Clinic Rochester -Dr. Dale King (Kentucky) My surgeon talking about venous stenting: https://youtu.be/0kPvLySVJlo Dr. Athos Patsalides + recent research study on venous stenting: https://jnis.bmj.com/content/11/2/175 Dr. Liu + venous stenting in EDS patients: https://vimeo.com/190164038 Johns Hopkins + venous stenting: https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/cerebral-fluid/procedures/ptc-stent.html Patient experiences: http://weillcornellbrainandspine.org/venous-sinus-stenting-patient-stories https://weillcornell.org/news/how-a-venous-stenting-procedure-helped-one-woman-find-relief-from-pulsatile-tinnitus http://weillcornellbrainandspine.org/patient-story/i-was-ready-not-be-lost-cause http://weillcornellbrainandspine.org/patient-story/it-was-time-do-something https://youtu.be/__M9v1FEHfs https://youtu.be/kLa_EqrSl50 #intracranialhypertension #pseudotumorcerebri #venousstenting ------------------------- Products & things I have found useful during my chronic illness journey ❤️️ → DNRS Program (Brain Retraining): https://retrainingthebrain.com/?wpam_id=104 Low-Histamine Meats: https://www.whiteoakpastures.com/?rfsn=6527073.0053413 (15% off code: FUSEDWITHLOVE) Redmond's Real Salt/Electrolytes: https://shop.redmond.life/discount/RIBEYERACH?redirect=%2F%3Fafmc%3DRIBEYERACH (15% off code: RIBEYERACH) Amazon favorites: https://www.amazon.com/shop/gonnetopots My etsy store → https://www.etsy.com/shop/FusedWithLoveCo My instagram → https://www.instagram.com/gonnetopots/ My blog → https://gonetopots.com My facebook page → https://www.facebook.com/gonetopots.rachael My twitter → https://twitter.com/gone_to_pots Some of the links in the description may be affiliate links! This basically means that if you purchase something through the link, I might receive a small commission (at no extra charge to you). Thank you so much for supporting my channel! 🎗