【小事大意義】SMA肌萎症系列．金安兄弟 罕見病友識於微時 患難見真情 SMA新藥會否帶來新希望？
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「我在2002年，他入學時認識他，他那時6歲，我11歲。」「我下班便過來，幫他洗澡、餵食、上洗手間」說話雖然有困難，但提到與好兄弟相知相識的點滴，患有罕見病皮爾羅賓士症的金金，娓娓道來，從容不逼。他更憶及醫院曾在夜半兩點急召他入院幫忙。 他坦然希望新藥可令好兄弟病況改善。而香港近年在SMA藥物治療上亦屢聞佳音，有望引入第三種，亦是以基因治療SMA的新藥，可助初生時確診的嬰兒，由根源入手，阻止神經元壞死。究竟兆安自已本身又有什麼人生目標？ ＃SMA ＃脊髓肌肉萎縮症 #病皮爾羅賓士症 ＃脊髓肌肉萎縮症慈善基金 # 恩慈醫療計劃 #小事大意義 #有線新聞 ------------------------------ Like & Follow 👍👍👍 有線新聞facebook ► https://www.facebook.com/icable.news 有線新聞Instagram ► https://www.instagram.com/icable.news 有線生活facebook ► https://www.facebook.com/icable.life 有線生活Instagram ► https://www.instagram.com/icable.life 有線娛樂facebook ► https://www.facebook.com/icable.ent 有線健康facebook ► https://www.facebook.com/icable.health HOY TV facebook ► https://www.facebook.com/hkhoy HOY TV Instagram ► https://www.instagram.com/hk.hoy/
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