A Teenager with Childhood Alzheimer's

Special Books by Special Kids November 21, 2024
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Special Books by Special Kids

@specialbooksbyspecialkids

About

These interviews are intended to create a more inclusive world. SBSK started when I was a teacher for students with disabilities. Originally intended to be a book written by my students, SBSK soon grew to be video interviews of disabled people of all ages and diagnoses. Since our beginning in 2015, I have interviewed hundreds of people across the world while providing over $2,000,000 to those featured on this channel through a combination of grants and fundraising. Starting in 2015, SBSK is now a 501(c)3 organization that seeks to normalize the diversity of the human condition under the pillars of honesty, respect, mindfulness, positivity and collaboration. This multi-media movement supports the acceptance and inclusion of all members of the neurodivergent/disability community. -Chris

Video Description

Connor is diagnosed with Sanfilippo Syndrome (Type C), a rare form of childhood Alzheimer's, which has an average life expectancy of just 23 years. Despite the challenges, Connor’s brother, Keenan, is determined to treasure the time they have together while making sure that Connor is included and has a full life. Support SBSK at https://www.patreon.com/c/sbsk

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