Families Navigating Rare Condition: CDKL5
Attitude
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Attitude, with 20 years of expertise as multimedia specialists and documentary makers, celebrates people with disabilities by presenting life from an authentic perspective. Our stories highlight the challenges and aspirations of extraordinary individuals, fostering connections between audiences and the experiences of those living with disabilities. We encourage viewers to walk in someone else's shoes, communicating simply and respectfully without resorting to pity or clichés. Our content, received globally, inspires empathy, understanding, and a desire to make a difference. Our work also helps brands authentically connect with the human experience. Our digital and broadcast content has earned numerous international awards. Learn more at www.attitudelive.com
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Video Description
Learning that your baby has a rare, complex condition is life altering. In this episode we meet three families whose young children have all been diagnosed with CDKL5 - a condition that causes epilepsy and limits their ability to walk, talk and eat. There are just 10 children in the country with CDKL5, making the community small but supportive. These three families have all taken their own unique approaches in navigating daily life - from physiotherapy to diet, education and medication. https://www.tiktok.com/@attitudepictures
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