Groundbreaking Chronic Fatigue Syndrome Research (ME/CFS)
Raelan Agle
@raelanagleAbout
Have you subscribed? It's the best way you can ensure Youtube offers you all my videos here so you can ensure you see the ones that are most helpful to you. Plus, it's the best way for you to help others by telling the algorythm to put these videos in front others who might also benefit from this information. Welcome! If you're facing ME/CFS, Long COVID, or something similar, you are in exactly the right place. This channel shares hundreds of inspiring full recovery stories, the latest recovery science, and practical strategies—helping you find hope, gain insight, and take your next steps with clarity and confidence. I’m Raelan Agle, and I lived with ME/CFS for ten years before fully recovering. Before facing this condition, I earned a master’s degree in Social Work and worked as a clinical social worker in medical settings which informs how I support others here. My mission here is simple: to show you that recovery is possible & that you don’t have to figure it out alone.
Latest Posts
Video Description
Physician, geneticist, and researcher Dr. John Greally shares the groundbreaking chronic fatigue syndrome (ME/CFS) research that he and his team are conducting aiming to establish diagnostic testing and treatment protocols for the millions of people facing this debilitating condition worldwide. ME/CFS advocate Liz Carlson also joins us to share her role in supporting the funding for this and to let others know how they can get involved. AS MENTIONED IN THE VIDEO: How to donate to Dr. Greally's research (or learn more about it) - https://kernls.com/projects/foundation-to-treat-cfs?utm_source=Champion&utm_medium=Youtube&utm_campaign=Toolkit_TeamLizRaelan&referredId=772cbc2a-3752-4179-9bba-f49b73fb5f42 Center for Solutions for ME/CFS at Columbia -https://www.publichealth.columbia.edu/research/center-infection-and-immunity/center-solutions-mecfs Albert Einstein Montefiore Medical Center / Dr. John Greally -https://www.montefiore.org/body.cfm?id=1735&action=detail&ref=3391 Liz Carlson - https://healwithliz.com PLEASE NOTE: All donors will receive a tax receipt from Albert Einstein. Although donations through the link provided are preferred, 100% of donations made via the YouTube '$Thanks' button on this video will go directly towards this ME/CFS research project (no tax receipts will be issued for these). _ _ _ _ _ ✅ 👉 OTHER HELPFUL RECOVERY RESOURCES: 📈 FREE Step-By-Step Recovery Masterclass: https://cfsrecovery.co/recovery-foundations-849513?el=yt-raelan052&htrafficsource=youtube&hcategory=ambassador&hgoal=foundations 📱 Recovery app on your phone! Try Curable—6 weeks FREE: http://www.curable.com/raelanagle 👩🏻🦱 Prefer a self-study course? One-time purchase with bi-weekly support. Try Brain Training 101 with Raelan — https://bit.ly/BT101Raelan ________ BECOME A CHANNEL MEMBER (Just $4 a month!) ✅ Your support makes a huge difference in sharing recovery stories 👇 https://www.youtube.com/channel/UCy4EjD4exCbtuGQkSa71ozA/join STRUGGLING WITH LONG VIDEOS? ✅ Subscribe to my weekly newsletter for a bullet-point summary from our latest recovery interview 💌 https://mailchi.mp/3bd95045319b/raelan-agle LEARN MORE: ✅ Check out my book! 📖 Finding Freedom: Escaping From the Prison of Chronic Fatigue Syndrome. View on Amazon - https://amzn.to/2LtzBcl ✅ Join my free course! 👩🏻 Lifestyle Pacing: Tools for Optimizing Your Energy and Achieving Your Goals (join for FREE with this affiliate link) - https://skl.sh/3BMsuqk ✅ Need help with food? 🥝 Join my course Mastering Meal Planning: Stress Less, Enjoy More, & Thrive - https://bit.ly/40SDHyM LET’S BE FRIENDS: 📌 Join My Supportive Facebook Group — https://www.facebook.com/groups/healingmecfs 📸 Instagram — https://www.instagram.com/raelan.agle 🌐 Visit My Website — https://raelanagle.com 📌 WANT TO BE A GUEST ON MY CHANNEL? Let me know here 👉 https://forms.gle/qF2TXFzGVcJCbc6E6 TIMESTAMPS 00:00 Intro: Dr. John Greally & Liz Carlson 02:30 Dr. Greally’s work as a Bronx physician & geneticist 03:40 Why he’s passionate about ME/CFS research & his Columbia connection 05:06 Covid’s major realization 05:35 Collaboration with Columbia’s ME/CFS Center 08:25 Why past ME/CFS gene studies were inconclusive + new test success 09:10 The importance of concrete markers for ME/CFS (+ personal stories) 11:35 How finding mechanisms could lead to diagnostics & treatments 13:30 What are epigenetics, and how do they relate to disease? 10:05 What is a gene? Dr. Greally’s highway analogy 17:48 How stress activates genes & exercise findings in ME/CFS 19:36 Genomics study details + sensitive blood pressure tests 22:12 Challenges physicians face diagnosing ME/CFS 24:47 Dr. Sri Raj’s role as a geneticist in this study 28:10 Dr. Greally on the UK’s Decode ME project 30:58 Are there different types of ME/CFS? 36:45 Gut microbiome research & ME/CFS 39:59 Are long COVID & ME/CFS the same? 41:41 Genetic differences: ME/CFS vs non-ME/CFS 44:33 Research costs per participant 46:10 Potential treatment options from this research 48:30 How to support Dr. Greally’s ME/CFS research … NOTE: This description may contain affiliate links to products I enjoy using myself. As an Amazon Associate, I earn from qualifying purchases. Should you choose to use these links, this channel may earn affiliate commissions at no additional cost to you. I appreciate your support! DISCLAIMER: Dr. John Greally's interview on my channel is independent and is NOT an endorsement of any content on my or Liz Carlson's channels. In addition, this is for information purposes only and nothing we share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything we talk about here might be right for you. #chronicfatiguesyndrome #cfs #chronicfatigue
Upgrade Your Everyday
AI-recommended products based on this video

Kasa Smart Outdoor Smart Plug by TP-Link (KP400) - Smart WiFi Outlet with 2 Sockets, IP64 Waterproof, Works with Alexa and Google Home, 2.4GHz WiFi Required, No Hub Required, Sunset & Sunrise Offset

Oraolo Open Ear Headphones, Bluetooth 5.4 Wireless Earbuds with Stereo Sound, ENC Clear Call, 21H Playtime, Type-C Charging, Touch Control, IPX6 Waterproof Open Ear Clip-On Earbuds for outdoor workout

Open Ear Wireless Earbuds, Sports Bluetooth Headphones with Real Time Translation, 80Hrs Playtime with LED Power Display, Noise Canceling Headset, IP55 Waterproof Earphones for Workout/Running (Black)

Wireless Earbuds, Sports Bluetooth Headphones, 80Hrs Playtime Ear Buds with LED Power Display, Noise Canceling Headset, IPX7 Waterproof Earphones for Workout/Running Z(Black)

Monster Wireless Earbuds Open Ear AC311, Bluetooth 5.4 Open Ear Headphones, Up to 30 Hours Playtimes Bluetooth Ear Earphones with Stereo Sound, Touch Control and IPX5 Waterproof Open Ear Buds

Brita Stainless Steel Premium Filtering Water Bottle, BPA-Free, Reusable, Insulated, Replaces 300 Plastic Water Bottles, Filter Lasts 2 Months or 40 Gallons, Includes 1 Filter, Carbon - 20 oz.

Simple Modern Filtered Water Bottle | Insulated Stainless-Steel Carbon Filter Travel Water Bottles | Reusable for Clean Drinking Water On The Go | 24oz, Sea Glass Sage

FITVII Health & Fitness Tracker (Answer/Make Calls), Smart Watch with 24/7 Heart Rate and Blood Pressure, Sleep Tracking Monitor, 120+ Sport Mode Activity Tracker

AYATAHA AYATAHA Smart Watch for Kids, Smartwatch Fitness Tracker for Boys Girls, Children's Activity Watch 37 Sports Modes SMS Notification, HD Full Touchscreen IP67 Waterproof, Blue

Iaret Iaret Smart Watch for Women, 1.83" HD Fitness Tracker with 4 Bands, Answer/Make Calls, Heart Rate/Sleep/SpO2/Step Tracking, 100+ Sport Modes, Android/iPhone Compatible Gift (Rose Gold)

Smart Watch for Men Women 1.8" Fitness Tracker, Bluetooth Call, DIY Dial, Heart Rate Sleep Blood Oxygen Monitor, 100+ Sports Modes, IP68 Waterproof Smartwatch for Android iPhone, Alexa Built-in

Hand Warmers 2 Pack, 14000mAh Rechargeable Hand Warmers, Electric Hand Warmer Reusable, Portable Power Bank USB Hand Warmers 4 Levels 8 Heating, Gifts for Raynauds Ski Golf Camping

Hand Warmers Rechargeable, 10000mAh Electric Heated Gloves Power Bank Portable Graphene Handwarmers Pouch with 3 Levels & Double-Sided Heating for Hunting Camping Golf Xmas Gifts for Women Men Kids

2Pack Rechargeable Hand Warmer, 8000mAh Electric Hand Warmer Power Bank, Portable USB-C Hand Warmer for Pocket, Reusable Hand Warmer Up to 8 hrs Each, Warm Gift for Men Women, for Hunting, Camping

GTOCE Portable Charger,40000mAh Power Bank with 22.5W Fast Charging LED Digital Display Battery Pack with 6 Outputs 2 Inputs, Type C Powerbank Portable Charger for iPhone 16 pro Samsung AirPods,Black

Monster Sleep Ear200, Wireless in-Ear Headphones, Bluetooth 6.0 Sleep Headphones, with ANC Active Noise Cancellation Designed for Side Sleepers, 30 Hours of bass Stereo Sound.

Monster Sleep Ear100 Ear Buds, Sleep Earbuds with Stereo Sound, Design for Side Sleeper, 32H Playtime, Bluetooth 6.0, ENC Noise Cancelling, IPX6 Waterproof Mini Headphones, White

Monster Sleep Ear100 Ear Buds, Sleep Earbuds with Stereo Sound, Design for Side Sleeper, 32H Playtime, Bluetooth 6.0, ENC Noise Cancelling, IPX6 Waterproof Mini Headphones, Black

Monster Sleep Ear100 Ear Buds, Sleep Earbuds with Stereo Sound, Design for Side Sleeper, 32H Playtime, Bluetooth 6.0, ENC Noise Cancelling, IPX6 Waterproof Mini Headphones, Black

Hydroponics Growing System Indoor Garden - Herb Garden with Grow Light, 15 Pods Stainless Steel Indoor Garden Kit, Auto Timer, Gardening Gift for All Ages

Umbra Triflora Hanging Planter for Window, Indoor Herb Garden, Set of 5, White/Black

Large Hydroponics Growing System 14 Pods, Indoor Herb Garden with LED Grow Light, 5L Water Tank, Hydroponic Grow Kit with 3 Auto-Timers, Rotatable Light Panel and Child Lock for Home School Gardening

Hanging Planter Hanging Plant Holder, 6 Inch 4 Indoor Plant Pots, Wall/Window Plant Hanger Indoor Herb Garden

slopehill Multi Hair Stylers & Hair Straightener - 2 in 1 Wet to Dry Air Straightener and Hair Dryer Combo with High Speed Air + Rapid Heat-Up + Customizable Temperature(Pink)

Hi.FANCY Portable Laptop Stand with Dual Cooling Fans for 14-17inch Laptops, Grey, 23.5 x 25.9 x 0.95cm

Laptop Stand for Desk, Adjustable Laptop Riser ABS+Silicone Foldable Portable Laptop Holder, Ventilated Cooling Notebook Stand for 10-15.6” Laptops,Tablet-Black

JETech 5 in 1 Case for Samsung Galaxy S25 Ultra 5G with 2-Pack Each Tempered Glass Screen Protector and Camera Lens Protector, Non-Yellowing Shockproof Bumper Phone Cover (Clear)

TAURI for iPhone 17 Pro Max Case 6.9" with 1-Pack Screen Protector, Camera Lens Full Protection, Military-Grade Protection, Shockproof Transparent Back Bumper Phone Cover - Clear Global Recycled Standard

TAURI for iPhone 17 Pro Case 6.3" with 1-Pack Screen Protector, Camera Lens Full Protection, Military-Grade Protection, Shockproof Transparent Back Bumper Phone Cover - Clear Global Recycled Standard

JOINPAYA 1Set Rechargeable Hand Warmer Hand Heater for Winter Heating Levels Compact

Shakven Rechargeable Hand Warmer | Cute Comfortable Portable Hand Warmers,Ergonomic Adjustable Energy-Efficient Small Heater for Travel, Outdoor, Winter

OCOOPA IP45 Waterproof Hand Warmer Rechargeable, Up to 15hrs Heat,10000mAh Durable Quick Charge Electric Hand Heater, PD Compatible, 3 Levels for Outdoors, Heavy Duty, H01-PD PRO




















